First of all, I would like to say thank you in a million for the kindness help out and support on us (money, lucky star, lucky rice, prays, well wishes and etc). At here, I would like to make an updates to you all on how is Kai Xin and also the trip to Singapore.
We are safe and backed to Malaysia from Singapore after several assessments were carried out included recipient and donor. For Kai Xin, she went through all the assessments; her status for now is still ok and if she don’t carry out the liver transplant operation, surely will lead to the liver failure.
As usual, a lot of relatives, colleagues, friends asked me when is the operation is going to carry out, is the transplant operation date being fixed and etc. However, myself and even the liver transplant team couldn’t given me a tentative date for the operation because her weight is not up to the requirement 8.0 kg (at least 7.6 kg and above, they will start the workout and most probably arrange the date for us). It is because the main factors for the transplant is not only timing, it is also depend on the patient’s requirement and health condition. Thus, we only can do for now is pushing up her weight and maintain her healthy level at the tip-top condition.
For you all information, as spoken to the liver transplant team, to workout a liver transplant is not easy as compare to other operation. They required a lot of assessments to be carried out for both recipient and donor. When everything (patient’s weight, health condition for patient and donor, mentality readiness, and so on) is ready for the patient and donor, they will quickly arrange the operation in the soonest time. Surely, they wouldn’t take the risk to go for the operation if the patient and even the donor are not fit.
On donor side, since father is not a suitable person to be the donor, now they work out the assessment on mother. The reason is father’s liver artery is too short and narrow if the surgeon cut out the left lobe of the liver. Although there is no risk for father, but it will lead for future complication and the result will not be good for Kai Xin. When I heard this outcome, I feel so sad and really cried out after walked out from surgeon’s clinical room.
I think the GOD must has more important tasks for father to carry out. On the day, it is a very difficult night (Thursday) for me and Huey Jing to fall in sleep, we feel worry, tension, fear and etc. Because right after the surgeon turned down me as the donor, immediate we arranged Huey Jing to carry out the most important test (CT Scan) on Friday morning. Is very lucky and I think mostly there are a lot of wishes, prayers from you all to support us, Huey Jing successfully went through the vital scan and her liver size and artery structure is very complete and straight forward (our legs were shaking when the pediatric surgeon Prof. Prabha [liver transplant main surgeon] opened up the hospital system to go through the scanned result in front of us, wow at that moment both of us can only pray, pray and pray). So at this stage, Huey Jing is a suitable donor prior the rest of the assessments.
So the next course of action in summary is: -
- Kai Xin has to gain her weight up to 8 Kg, liver transplant team will arrange the day for operation when her weight up to 7.6 Kg (Current weight, 7.2 kg inclusive of water in tummy)
- Maintain Kai Xin’s healthy level as good as possible
- Mother can carry out the rest of the assessments anytime
- Kai Xin will stay in UM for longer period in order to gain up her weight. As recommended by doctor, they will use a feeding pump to feed her gradually in the night time (less milk volume and increase feeding frequency).
We will stay strong and continue the long journey with our Little Kai Xin.
Eric, Huey Jing and Little Kai Xin